Meanwhile, we’ve had a couple of additional doctor visits. First, I think you already know, was the overnight oximetry test that revealed Ethan was getting enough oxygen, so he has been off the o2 for a while now which is great (what a bloody nuisance that thing was – you try holding nose tube in place). Then we followed up with a visit to Dr. Upton who is a plastic surgeon specializing in hand and feet reconstruction. I have to say that both Brittany and I really liked this guy. He’s been one of the first doctor’s to see Ethan as a person and a human being while at the same time being clinically pragmatic. We went to his office in Chestnut Hill and saw all the hands and feet he worked on (he makes molds of his work) - he had a room (kind of like a trophy room) filled from bottom to top of the work he had done and it was pretty amazing. His experience with Apert’s is vast (he’s done tons of Aperts hands). The thing that stands out about him is that he remembers everyone he has done surgery on – by name. He kept picking up molds and saying, well this is so and so, and I have’t seen him in a while but his mom was bla bla bla... The only problem was tat he did not carry our health insurance plan but he also assured us that money was not going to stand in the way either – he would do the surgery for free if need be. Pretty nice guy if you ask me :)
On another note, with the exception of Ethan, my Mom and Brittany, all the boys have had a bought with the flu/cold. I kicked us all off, closely followed by Callen then Liam. In the kids schools, at one point Callen had 10 kids left in his class so it’s really going around. They are no longer testing for H1N1 and the general assumption is that if you have the flu, you probably have H1N1 and should treat it accordingly. Meanwhile, we’re still waiting on the swine flu vaccine that is nowhere to be found. The good news is we are now emerging from the flu/cold bought, with some very minor lingering coughs but with no more fevers, headaches and constant coughing. Ethan has been breastfeeding like a champ and as you know, that means he gets all the good stuff in mother’s milk has to help fight off viruses and such. Of late he does seem to have stuffy nose which obviously makes his breathing harder, specially since his airways are also congenitally narrower.
We also had a visit from the early intervention nurses that are real stars and whose goals are to help Ethan achieve his developmental and social milestones. Right now it’s a little to early to tell where Ethan is but the expectation and norm for Apert’s is for developmental milestones to be reached later than usual. However, recently Ethan has been rolling himself over and making plenty of eye contact and typical cooing sounds (sounds like vowels) which is good. The kid still loves to stare at wall shadows and out window (I’d say he has a fascination), and thanks for Pepa (my sister), he has had the company of his two little friends he loves – they are called spot and dot (on account of the fact that one that has a bumpy nose, spot, and the one that has a flat nose, dot).
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